NL
This dissertation focuses on the experience and representation of family caregiving in the palliative phase. When people wish to die at home, the role of their loved ones is crucial, yet often burdensome. Family caregiving is not only about performing care tasks, but also about values, (moral) dilemmas, and expectations. Especially with increasing pressure on families due to societal changes, supporting caregivers is essential. Understanding the complex and normative nature of family caregiving can help explain why loved ones often want to—and are able to—continue providing care.
Together with comic artists, the graphic novel Naasten was developed for a broad audience. This interdisciplinary collaboration yielded valuable insights for other researchers interested in using artistic methods. The dissertation argues that comics like Naasten, when carefully applied—particularly in educational contexts—can spark conversations about complex experiences. Such conversations are important, as family caregiving can be both a disruptive and deeply meaningful experience for many of us.
Maaike Haan (1988) has a background in pedagogy, philosophy, and ethics. In her PhD project, she focused on family caregiving in the palliative phase, publishing the comic book Naasten with illustrators and developing educational materials. As a trainer, she aims to foster dialogue and reflection. Additionally, she works as general coordinator at VPTZ Arnhem | Midden Gelderland, supporting family caregivers through volunteer work.
On Friday 14 November 2025 at 10.30u Maaike Haan will defend her Phd thesis entiteld 'Tangled: Understanding family caregivers in a palliative care context via qualitative research, ethics, and comic art'.
Promotor is prof. dr. prof. dr. M. Boenink copromotors are dr. L.J.P. van Gurp, dr. G.J. Olthuis.
The defense can be followed via this live stream.